• My Experience

    Having a Job and Chronic Illness

    If you’ve been following my blog, you know that I recently got hired at a company. I am a receptionist for a senior living facility. It’s a great fit for me. I absolutely love it so far and so does Crush. This is my fifth job but my first time having a job while being chronically ill. It’s not what I expected in a lot of ways but my employers have made the transition seamless. I knew that my work life would look different from the average person. Other than having Crush, I need various accommodations to ensure my health and safety. That ranges from simple things like eating at…

  • Helpful Hints

    What You Need For Surgery Recovery

    I have recently completed my seventh surgery. That feels crazy to say. I have learned quite a bit since my first and I wanted to share that wisdom with you. I’ve written before about what to expect. I highly recommend checking that out if you haven’t. Now we’re going to talk about items that you need for recovery. This will obviously depend on your specific surgery but these are the basics. Notepad and pen This is great to have handy to write down medication times. It’s also good for pain tracking. In general, I find it incredibly helpful to have. I have always still accepted calls post surgery and if…

  • My Experience

    I’m Starting a Youtube Channel

    I’m in the process of trying to start a Youtube channel. After taking a poll on instagram, it’s clear that Youtube is an accessible platform. It can also reach the largest audience. I’d love to be able to grow my advocacy beyond my Instagram and blog. I love both and I am excited at the prospect of expansion.  Please be patient with me while I’m in this transition phase. By no means am I accustomed to editing, filming, or technologically savvy in any way. That being said, I am trying my hardest to get it started as quickly as possible. In my ideal world, I’d love to have blog posts…

  • My Experience

    I Got A Job

    I’m excited to announce that I am officially employed! Finding a job has been a taxing process that I wasn’t prepared for. I thought it would be as easy as it had been in the past. Boy was I wrong. After what felt like a long journey, I finally found a good fit. The best news of all is that they chose me knowing that Crush would be by my side. I am now a receptionist.  I chose to apply for reception jobs. They seemed like the most feasible option for me. Although this job strays from what my original plan was, I think we will all make a great…

  • My Experience

    Feeling Stuck

    I have felt stuck lately. Stuck not knowing what’s coming next, I feel unable to move forward. It’s difficult when so much of life hangs in the balance. I could have another move in my near future or stay in Minnesota, surrounded by friends and family. That may sound like an easy option for most people. I like being off on my own though. It’s been difficult to accept the past few years that being on my own wasn’t an option. It wasn’t even a thought in my mind. I guess maybe it was a distant dream, but a dream that was far in the distance. Now, it’s not only…

  • My Experience

    Having a Flare

    I recently had a flare of my POTS. I chose not to wear compression and didn’t drink nearly enough water. The end result was intense dizziness and a killer headache. I brought up a lot of fear for me initially. Recently, my allergies have really taken a toll on me. My skin breaks out in rashes without warning. I’m itchy and Crush alerts a few times a day now. The more I thought about how close my illness is to being out of control again, the more discouraged I felt. I sat in that for a couple hours. Now, I’m trying to reframe. I think I can border toxic positivity…

  • Helpful Hints

    Five Things I Do Because of POTS

    There are some things I do in my daily life that people give me weird looks for. What a lot of people don’t know is most of these things are because of my chronic illness. Most of the time, if I’m doing something out of the ordinary it’s because of Dysautonomia or POTS. Now, I leave some room for error. I am somewhat weird sometimes. I can’t blame all of my odd habits on POTs but I will blame most things on chronic illness. So here’s a list of five things I do because of POTs: Pick Stuff Up With My Feet This is probably the weirdest. People make fun…

  • Helpful Hints

    How To Get Back Into Your Routine

    If you read my article on Monday, you know I’m out of my routine. I thought for a while I was doing myself a favor by being loose with my schedule. Now, I see once again why I deserve my schedule. I deserve to sleep well. I deserve to eat well. I deserve to feel ready for my day. My schedule provides me with all of those things. It allows me to be the greatest version of myself. So here’s how I am getting back into my routine: Start Slow We’re running a marathon here, not a sprint. We have to start slow. I started by going to bed an…

  • My Experience

    Celebrating Life!

    On December 22, 2019 I came very close to losing my life. It was by far the closest call I’ve had. I was hospitalized nine times previous and on and off steroids, that is quite the claim. I feel lucky to be alive. A large part of why I’m here today is because of my service dog, Crush. I couldn’t be more grateful to have him in my life. After being discharged from the ICU on December 23, 2019, I’m happy to report I haven’t been hospitalized since! I can’t explain to you what an incredible accomplishment that feels like. This year has included six surgeries. Including one to get…

  • My Experience

    My Goals for 2021

    On Wednesday, I looked at my goals for 2020. I’m happy to say that I met almost all of them with flying colors. I don’t necessarily believe in New Years Resolutions. However, I think it’s important to always have goals and strive to meet them. Once again, I will write my goals out for outward accountability. I will push the boundaries of what I feel comfortable doing in order to become the best version of myself. Goals for my personal life:My number one goal for 2021 is to graduate college. I’m on track to receive my BA in the Summer. I’d also like to finish my application to graduate school.…